Recognising that informal (also termed family, whānau, aiga or unpaid) caregivers/carers are a vital part of Aotearoa New Zealand’s health system, providing care and support for loved ones, whānau, friends and neighbours, this study aimed to explore the experiences of older informal caregivers during the COVID-19 pandemic. Priority research questions were: how did informal caregivers experience caregiving during the pandemic, and how might we support them during another pandemic, disaster, or national emergency? To our knowledge, this is the first exploration of such experiences in Aotearoa New Zealand. We wanted to understand the unprecedented challenges and barriers informal caregivers faced during the pandemic and highlight the resilience and mana (power, strength) of informal caregivers in overcoming them. To explore the lived experiences of informal caregiving during the pandemic, the research team travelled across New Zealand between May 2023 and February 2024 to conduct 81 in-depth interviews, with 73 completed face-to-face, four via Zoom and four by phone. A total of 34 male and 47 female informal caregivers were interviewed, including 35 Māori and 46 non-Māori. The mean age of participants was 66 years old. Thirty-nine rural and 42 urban-dwelling informal caregivers were interviewed, and the study covered both the North and South Islands. A Kaupapa Māori researcher and a Māori adviser oversaw appropriate tikanga (processes), kōrero (discussion) and manaakitanga (care and support) for all the Māori participants interviewed. The COVID-19 pandemic placed significant strain on older informal caregivers in Aotearoa New Zealand, exacerbating existing challenges and exposing critical gaps in support systems. Many participants experienced heightened emotional and psychological distress due to increased caregiving demands, social isolation, and the disruption of formal and informal support networks. The closure of essential services meant that informal caregivers in this study had to navigate complex healthcare systems with little guidance, often facing bureaucratic hurdles and limited access to respite care. Financial strain further compounded these difficulties, with some participants struggling to meet the rising costs associated with informal caregiving while experiencing reduced income or employment instability. For Māori participants, the inability to engage in kanohi ki te kanohi (face-to-face) interactions with whānau and communities disrupted cultural traditions such as whanaungatanga, tangihanga (funeral practices), and communal caregiving, intensifying feelings of isolation and distress. Despite these challenges, participants demonstrated remarkable resilience and adaptability, drawing on their life experiences (or "resilience in older people") and existing support systems to navigate the pandemic. Many participants relied on self-sufficiency, using strategies learned from past crises and disasters such as the 2010-2011 Canterbury earthquakes and the 1940s/1950s polio epidemics to manage caregiving responsibilities and everyday challenges with limited external assistance. Strengthened relationships with care recipients and an increased sense of community support were positive outcomes for some participants, who found solace in tighter family bonds and mutual aid from neighbours and local groups. Māori participants, in particular, emphasised the importance of cultural and community-based networks, with iwi and extended whānau playing crucial roles in providing informal support. These findings underscore the need for policies that recognise and support the diverse needs of informal caregivers, including tailored caregiving assistance, clearer communication about available services, and culturally responsive caregiving frameworks that strengthen resilience in future health crises. Findings from this study highlight the need for: 1) tailored, context-specific support systems: Formal support services must be more flexible to accommodate the diverse needs of informal caregivers, particularly those in rural and Māori communities; 2) Improved access to information and services: Many participants were unaware of available support, pointing to the need for clearer, caregiver-specific communication and helplines; 3) Enhancing emotional and social support mechanisms: Regular check-ins from healthcare providers and community groups could alleviate the emotional burden of caregiving; and 4) Resilience-based and bicultural approaches to caregiving support: Policies should integrate Māori perspectives on informal caregiving and strengthen social capital among informal caregivers. It is clear from this research that no one-size-fits-all approach is appropriate for supporting informal caregivers. This research provides a critical evidence base for improving the support structures available to informal caregivers, ensuring they are better prepared for future pandemics, disasters, and national emergencies.
Interagency Emergency Response Teams (IERTs) play acrucial role in times of disasters. Therefore it is crucial to understand more thoroughly the communication roles and responsibilities of interagency team members and to examine how individual members communicate within a complex, evolving, and unstable environment. It is also important to understand how different organisational identities and their spatial geographies contribute to the interactional dynamics. Earthquakes hit the Canterbury region on September, 2010 and then on February 2011 a more devastating shallow earthquake struck resulting in severe damage to the Aged Residential Care (ARC) sector. Over 600 ARC beds were lost and 500 elderly and disabled people were displaced. Canterbury District Health Board (CDHB) set up an interagency emergency response team to address the issues of vulnerable people with significant health and disability needs who were unable to access their normal supports due to the effects of the earthquake. The purpose of this qualitative interpretive study is to focus on the case study of the response and evacuation of vulnerable people by interagencies responding to the event. Staff within these agencies were interviewed with a focus on the critical incidents that either stabilised or negatively influenced the outcome of the response. The findings included the complexity of navigating multiple agencies communication channels; understanding the different hierarchies and communication methods within each agency; data communication challenges when infrastructures were severely damaged; the importance of having the right skills, personal attributes and understanding of the organisations in the response; and the significance of having a liaison in situ representing and communicating through to agencies geographically dispersed from Canterbury. It is hoped that this research will assist in determining a future framework for interagency communication best practice and policy.
Climate change and population growth will increase vulnerability to natural and human-made disasters or pandemics. Longitudinal research studies may be adversely impacted by a lack of access to study resources, inability to travel around the urban environment, reluctance of sample members to attend appointments, sample members moving residence and potentially also the destruction of research facilities. One of the key advantages of longitudinal research is the ability to assess associations between exposures and outcomes by limiting the influence of sample selection bias. However, ensuring the validity and reliability of findings in longitudinal research requires the recruitment and retention of respondents who are willing and able to be repeatedly assessed over an extended period of time. This study examined recruitment and retention strategies of 11 longitudinal cohort studies operating during the Christchurch, New Zealand earthquake sequence which began in September 2010, including staff perceptions of the major impediments to study operations during/after the earthquakes and respondents’ barriers to participation. Successful strategies to assist recruitment and retention after a natural disaster are discussed. With the current COVID-19 pandemic, longitudinal studies are potentially encountering some of the issues highlighted in this paper including: closure of facilities, restricted movement of research staff and sample members, and reluctance of sample members to attend appointments. It is possible that suggestions in this paper may be implemented so that longitudinal studies can protect the operation of their research programmes.<br /><br />Key messages<br /><ul><li>Recruitment and retention of longitudinal study participants is challenging following a natural disaster.</li><br /><li>The long-lasting, global effects of the Covid 19 pandemic will increase this problem.</li><br /><li>Longitudinal study researchers should develop protocols to support retention before a disaster occurs.</li><br /><li>Researchers need to be pragmatic and flexible in the design and implementation of their studies.</li></ul>
The Canterbury earthquakes are unique in that the there have been a series of major earthquakes, each with their own subsequent aftershock pattern. These have extended from the first large earthquake in September 2010 to currently, at the time of writing, two years later. The last significant earthquake of over magnitude 5.0 on the Richter scale was in May on 2012, and the total number of aftershocks has exceeded 12,000. The consequences, in addition to the loss of life, significant injury and widespread damage, have been far reaching and long term, with detrimental effects and still uncertain effects for many. This provides unique challenges for individuals, communities, organisations and institutions within Canterbury. This document reviews research-based understandings of the concept of resilience. A conceptual model is developed which identifies a number of the factors that influence individual and household resilience. Guided by the model, a series of recommendations are developed for practices that will support individual and household resilience in Canterbury in the aftermath of the 2010-2011 earthquakes.
